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Parents of Children with Autism Find Help at the Children's Health Council

 

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Contributed by Amanda Bach

        Recent reports in California if an unexplainable jump in autism cases - 13% in 2004 alone - are once again bringing the mysterious brain disorder to the forefront of national attention. So what do we know about autism right now? What should parents know about the assessment and treatment for this disorder? And most importantly, what can parents do to help their children? Child experts from the Children's Health Council (CHC) in Paolo Alto, CA offer answers.

Autism in the News - What We Know

        In early February, the California Department of Development Services released figures reflecting a sudden increase throughout the State in autism cases. Some basic facts:

        One in 150 children is being diagnosed with autism - versus 1 in 2,500 just 10 years ago. There are 1.5 million children living with autism in the United States.

        Autism was first recognized as a specific condition in 1943 by Dr. Leo Kanner. Although there have been written accounts of individuals suffering from autism-like symptoms since the 18th century, the term was first used by Swiss psychiatrist Eugen Bleuler around 1911 to describe the behavior of a person's withdrawal from the outside world. The world autism was developed from the Greek word "autos," which means "self."

       Early diagnosis is undisputedly the best things parents can do for their children. Diagnosis at an early age will improve the chances of success in treatments.

       No one treatment works for all children; an one child cannot necessarily rely on one treatment for an extended period of time. Treatment programs and services are often very expensive because of the complexity and time intensity required. For most children, the most promising treatment program will be a combination of services that includes behavioral therapy (or Applied Behavioral Analysis), speech and language therapy and occupational therapy. There have also been some anecdotal reports of successful treatment using alternative therapies, including vitamin and dietary restrictions, but this is still not considered the main form of intervention.

       Autistic children often have additional problems, such as gastrointestinal illnesses, sleeping difficulties, cognitive/learning difficulties or anxiety.

What Parents Should Know About Assessments

        Because there is no single test to diagnose autism, a parent or pediatrician who suspects that a child night have a autism or a pervasive developmental disorder should seek further evaluation from a qualified professional (e.g., psychologist, neurologist, psychiatrist) familiar with this group of disorders. A diagnosis should be made based on observations of the child's social and relatedness abilities (with peers, siblings and/or parents), play and communication skills and reports of behaviors in various contexts.

      Because autism is considered a spectrum disorder, children can exhibit any combination of symptoms and behaviors in any degree of severity. Many children with autism do often love and make eye contact, show affection, smile, laugh and demonstrate a variety of other emotions in varying degrees. They also capable of responding to their environment in both positive and negative ways. One of common and potentially serious mistakes made when there is a question of a developmental problem with a child is waiting to see if the difficulties resolve on their own or even the dismissal of possibility of autism because not all of the symptoms and behaviors are exhibited.

       "Because we've learned that early intervention is helpful, we need to be careful not to fall into the "wait and see' mentality. Many parents express concerns early on about their child's ability to communicate and respond and these concerns need to be heard. A diagnosis should not be made based on the absence or presence of one behavior," warns child psychologist Dr. Lori Bond. "We should be looking at a pattern of behaviors. Clinicians need to keep the bigger picture in mind during assessments."

       Similarly, parents having children assessed often hear various terms (i.e. autistic-like, autistic tendencies, high-or low-functioning autism, etc.) used to described children within the autism spectrum. Parents should remember that, regardless of the words used to described their child, children with autism are capable of learning and functioning productively with appropriate education and treatment.

How Parents Can Help

        Services are readily available in the community through organizations like CHC, school districts and parent support groups. Parents are encouraged to contact their pediatrician for more information and referrals.

        The Children's Health Council offers a wide range of services from consultation to assessment and treatment for children with theise and related developmental concerns. For more information, contact the CHC at 650-688-3625 or visit them at: www.chconline.org.

Sources: The Children's Health Council in Palo Alto, CA.

KidsHealth.org - KidsHealth is the largest and most visited site on the Web providing doctor-approved health information about children from before birth through adolescence. Created by The Nemours Foundation's Center for Children's Health Media, KidsHealth provides families with accurate, up-to-date, and jargon-free health information they can use.
www.kidshealth.org

Contributor - Amanda Bach is co-founder and co-creator of SingleMom.com. The co-creator currently resides in California and Washington, DC. She was raised by a single mom and so she learned it first hand how difficult it was to watch her mom struggled everyday life. And that is the main reason she co-founded SingleMom.com to create this wonderful Website/organization. Her energy, natural creative ability and superior business intuition make her contributions to this website immeasurable. Her hobbies include volunteer, Internet, reading, ballet, traveling, snowboarding, and especially wine & food.

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